Hypoplastic left heart syndrome (HLHS) is a congenital heart disease (CHD) and requires surgical intervention involving the Norwood and Fontan procedure. Bethan is being treated at Birmingham Childrens Hospital.

Our book, Bethan - A year in the life of the baby with half a heart, describes the first year of our daughter, who was born with  hypoplastic left heart syndrome, and our times of hope and despair, as she battled to survive.  This 44,000-word book is written in a day-by-day diary format, with some 30 illustrative photographs. Whilst we wait to secure a publisher, you can purchase the book in one of 2 formats. Please see foot of this page to pay via secure credit/charge card facilities or alternatively send a cheque for £12.50 (includes p & p) made payable to Bethan’s Charities Appeal to 12 Badsey Lane, Evesham, Worcs, WR11 3EZ.

Help our 2 Charities

We are grateful to the Birmingham Children’s Hospital and the Edward’s Trust who provide accommodation for families of sick children at the hospital. All profits from the book will go to the 2 charities. Alternatively, why not make a donation.