hypoplastic left heart syndrome, congenital heart disease

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LATEST NEWS: Bethan had her stage 3 cardiac surgery in May 2009. She has recovered well and is back at school. Click here to get up to date news of her progress. The page will be updated regularly. Last update 16th May 2012.

Hypoplastic left heart syndrome (HLHS) is a congenital heart disease (CHD) and requires surgical intervention involving the Norwood and Fontan procedure. Bethan is being treated at Birmingham Childrens Hospital.

If you have any comments about our website, or would like to give us feedback about our book, please don’t hesitate to contact us:

Bryan and Mandy Edwards
12 Badsey Lane
Evesham, Worcestershire, U.K.
WR11 3EZ

Tel: 01386 761575

Email: manjayne@aol.com

You can also gets loads of information on Hypoplastic Left Heart Syndrome by visiting ‘Little Heart Matters’ at

‘Bethan - A Year in the life of the baby with half a heart’ is the title of my book. We want to tell you more about how we coped with Hypoplastic Left Heart Syndrome and raise some money for our 2 favourite charities. Just click the link: Buy book on the left for more details.