hypoplastic left heart syndrome, congenital heart disease

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LATEST NEWS: Bethan had her stage 3 cardiac surgery in May 2009. She has recovered well and is back at school. Click here to get up to date news of her progress. The page will be updated regularly. Last update 16th May 2012.

Hypoplastic left heart syndrome (HLHS) is a congenital heart disease (CHD) and requires surgical intervention involving the Norwood and Fontan procedure. Bethan is being treated at Birmingham Childrens Hospital.

It will tell you all the ups and downs of my first year coping with hypoplastic left heart syndrome, and you’ll also be raising money for charity.

In this section you will find loads of photos of little old me - from the time I was in hospital coping with hypoplastic left heart syndrome all the way up to the present day.

Don’t forget to keep checking back to my web site for updates on what I have been doing.

0 - 4 months Bethan’s First School Report

5 - 12 months 4-5 years

1 - 2 years First day at infants school

2 - 3 years

“it’s a really useful read for all medical staff caring for cardiac babies - the medical side takes over sometimes and we can forget the parents who are going through the pain and the emotion” - NURSE PRACTITIONER

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