Home. Donations. Buy Book. Bethan's Progress. My photos. My family. Contact. Useful Links. Home. Donations. Buy Book. Bethan's Progress. My photos. My family. Contact. Useful Links. hypoplastic left heart syndrome, congenital heart disease hypoplastic left heart syndrome, congenital heart disease
LATEST NEWS:  Click here to get latest news of  Bethan’s progress. Last updated 17th October 2021.

Hypoplastic left heart syndrome (HLHS) is a congenital heart disease (CHD) and requires surgical intervention involving the Norwood and Fontan procedure. Bethan underwent life saving heart surgery at Birmingham Childrens Hospital.

Our book, Bethan - A year in the life of the baby with half a heart, describes the first year of our daughter, who was born with  hypoplastic left heart syndrome, and our times of hope and despair, as she battled to survive.  This 44,000-word book is written in a day-by-day diary format, with 30 illustrative photographs. You can purchase the book as a pdf ebook that is emailed. Please see foot of this page to pay via secure credit/charge card facilities or alternatively send a cheque for £10 made payable to Bethan’s Charities Appeal to 18 Celandine Way, Evesham, Worcs, WR11 2LY.


Help our Charity

We are grateful to the Birmingham Children’s Hospital . All profits from the book will go to the charity.

2-Page Outline of Book
I’m Famous!
Read about me in articles from Woman magazine and the Evesham Journal.
100-page PDF version emailed to you world-wide..

PRICE: 10 U.K. Pounds
hypoplastic left heart syndrome, congenital heart disease
What the Literary Agents said...
“A powerful story”
“We read it with interest”
“Well written and very moving and honest”
“There is an enormous amount to admire in this work”
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